We keep an old shoebox, Gill and I, nestled in a drawer in our room. It's filled with thirty-three birthday cards for our two young sons: one for every year I'll miss until they're twenty-one. I wrote them because, since the end of 2017, I've been living with — and dying from — motor neurone disease. This book is about the process of saying goodbye. To my body, as I journey from unexpected clumsiness to a wheelchair that resembles a spacecraft, with rods and pads and dials and bleeps. To this world, as I play less of a part in it and find myself floating off into unlighted territory. To Gill, my wife. To Tom and Jimmy. is about the sadness (and the anger, and the fear), but it's about what's beautiful too. It's about love and fatherhood, about the precious experience of observing my last moments with this body, surrounded by the people who matter most. It's about what it feels like to confront the fact that my family will persist through time with only a memory of me. In many ways, it has been the most amazing time of my life.
