The Complete Guide to Branchio-Oto-Renal Syndrome (BORS)
Clear, practical information about a rare genetic disorder affecting the ears, neck, and kidneys.
Living with a rare condition like Branchio-Oto-Renal (BOR) Syndrome can feel overwhelming - especially when answers seem hard to find. This comprehensive, easy-to-read guide is here to change that.
Written with warmth, clarity, and deep understanding, The Complete Guide to Branchio-Oto-Renal Syndrome (BORS) offers reliable information, practical tools, and heartfelt support for every stage of the BOR journey - from diagnosis to adulthood.
Inside you'll discover:
• Clear explanations of genetics, symptoms, and testing
• Guidance on hearing, kidney health, and surgeries
• Advice for school, teen life, and adult healthcare
• Insights on family planning, fertility, and emotional wellbeing
• Practical checklists, templates, and journal prompts
• Ways to connect with the global BOR community
A trusted guide giving parents, teens, and professionals the tools to face BORS with confidence and hope.
About the Author
Fiona Cain is a passionate advocate for the BOR Syndrome community, drawing on years of experience supporting families, raising awareness, and creating educational resources. She is the founder of the Branchio-Oto-Renal Syndrome Education Centre™, dedicated to helping people worldwide understand and navigate life with BOR Syndrome.
© 2025 Fiona Cain / Branchio-Oto-Renal Syndrome Education Centre™
All rights reserved. Trademark registration pending. Legal action will be taken if necessary.
Visit: www.branchiootorenalsyndrome.com
