Battling a chronic disease can often be a lonely and frustrating ordeal. It doesnt have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the bodys systems.This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:Handling pre-diagnosis frustrationDealing with fears of medical treatment and surgeryManaging family issues and work issuesTalking with children Managing negative energyCoping with good and bad daysLiving life each dayWith sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.
